Palliative Care Policy
Lakshadweep
Introduction
Palliative care is an expanding
branch of modern medicine in which the sufferings either by physical or by
spiritual of patients are actively dealt with affection and empathy. The care
starts as early as possible when pain and sufferings and it will continue to be
a zone of comfort after the demise of the patient. The psychosocial and spiritual
components of both patient and family are fuels for the upcoming grief and bereavement
care.
A palliative care activist will
always accompany the diseased, but that should not be a burn out for the
activist. Really it is very hard to sit and hear and of course bear the colorless
life stories.
Somebody said, “It is very easy to
walk away rather than to sit and hear them”. As a palliative care activist we must be the
niche of love, truth and tolerance. And we must add color and flavor to their
life. Would anybody sacrifice their life for fellow men?
Once Abraham Lincoln told,
‘In
the end, it’s not the years in your life that count. It’s the life in your
years.’
Aims and
Objectives
1.
To provide almost total care for
the patient with terminal illness of life threatening illness so as to reduce
the burden of pain and sufferings.
2.
To reduce the pain and sufferings of the
victim of illness (physical as well as spiritual)
3.
To arrange
health care facilities for the patients and their family (especially when the
bread winner is debilitated) in terms of monetary, equipments and education.
4.
The rising of
funds for the welfare of the patients and their support is taken into a
paramount for which strong community participation is essential.
5.
To ensure the
community participation by means of social gatherings with other organizations,
institutions, arts clubs and NGOs
6.
The domiciliary
care for the bed ridden, elderly debilitated and terminal disease should be
strengthened and intensified by conducting Doctor led Home Care (DHC) and Nurse
led Home Care (NHC) in every week on rotation.
7.
The medicines
are to be delivered to those who are unable to fetch it from centre.
8.
The academic
works like medical education, awareness seminars, training programs, various
cultural programs etc. to promote health of society. It could be achieved only
by an institution of palliative studies.
9.
To seek aid from
government funds and panchayath to smoothen the functioning of the system.
10.
To look after the childrens of deceased at an
early age and provide them education and rehabilitation.
11.
To start vocational rehabilitation for
eligible patients and their families (coir mattresses, horticorp, bakery, soap
etc). it can be useful in reducing financial burden.
12.
The hospice
facility is of utmost importance to those elderly debilitated patients can have
a home. To establish and administer a community based hospice centre in
Kavaratti.
Categories
of care
§ General
Palliative Care for those with cancer, CVA, cardiac disease, diabetes etc
§ Geriatric
Care (age more than 65)
§ Pediatric
Palliative Care for those with CP, Polio etc
Health
care delivery
§ Home
care
o
Doctor led twice weekly (DHC)
o
Nurse led twice weekly in alteration
(NHC)
o
Drugs & supportive measures
§ Hospice
care
o
To locate, construct and administer
the hospice
o
Hospice policy
§ Hospital
care
o
Pain & Palliative care clinic to
start on IGH and eventually spread it to all islands
o
IP (5 beds) and OP
o
Relevant investigations
Administration
§ Patron
§ Director
§ Executive
Director
§ Office
Secretary
§ Accounts
Officer
§ Program
Coordinator
Clinics
§ Doctor
o
Specialist – 1
o
RMO - 1
§ Nurses
o
Clinical nurse consultant – 1
o
Registered nursing practitioner – 1
§ ANMs/
ASHA – 2
§ Volunteers
Funding
§ Charitable
basis
§ Trustees
§ Government
aid
Academics
§ Awareness
programs
o
Monthly programs
o
Specialists from mainland
o
LCD
§ Training
for volunteers
o
3 day program
§ Training
of doctors and nurses
o
With Pallium India
§ CMEs
Current
Planning
ü To
hire a building for clinic
ü To
attend the patient according to need
ü To
strengthen home care visits
ü To
start OP/IP in IGH (?)
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